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4 Steps to Managing Your Fear When Raising a Child with T1D

Hi, I’m Mochi, from SugarPaws! I’m a cozy little creature who loves curling up somewhere safe — but I’ve learned that hiding from scary feelings doesn’t make them go away. This article is for caregivers who carry a lot of fear around their child’s diabetes. Fear is real, and it makes sense. But it helps to name it, breathe through it, and come back to right now. Right now, you’re doing okay. That’s enough.
4 Steps to Managing Your Fear When Raising a Child with T1D

Learn more about navigating mental health while living with or caring for someone living with T1D HERE.

The fall chill in the air deepens as the leaves begin their inevitable eruption into glorious color. Children squeal with delight at the prospect of being frightened by houses decked out with ghosts, witches on broomsticks and ghoulish creatures. This is October, the month when a little Halloween fear can actually be fun. But, for most of us, fear is not a matter of child's play. We can't easily tuck away our fears like so many Halloween decorations, simply exchanging them for thoughts of thanksgiving because the calendar says we should.

When my son was diagnosed with type 1 diabetes at age five, I thought my greatest fear in managing his type 1 diabetes (T1D) would be injecting him with insulin. I would soon discover there were far greater fears awaiting me as his caregiver. "What if his blood sugar drops precipitously low while I'm sleeping?" "What if I can't control his ketones and blood sugars when he has a stomach virus?" "What if I don't manage his blood sugars tightly enough when he's young? What does that mean for his long-term health?"

These are the fears shared by every T1D parent within our collective community. Fear is a cloaked villain, lurking in the shadowlands of our minds. Catching us by surprise, fear for our child's safety can overwhelm our thoughts, locking us in repeating mental loops. Once that unseen villain kidnaps our thoughts, how do we escape his suffocating stranglehold? Next time the fear villain shows up unbidden, try these steps to send him packing.

1. Acknowledge your fear in managing your child's T1D

So often we feel the emotion without taking the time to name it. We hope by ignoring it, it will go away, when actually, the opposite is true. The more we ignore fear, the greater influence it has over us. Instead of ignoring fear, face it. Sit with it. Name its source by identifying the roots of your fear. You may be surprised to discover you've carried this same type of fear for a long time, even before your child's diagnosis. Talk about your fears with a trusted friend, a therapist, or a counselor.

2. Lean on meditation or prayer when fear rises up and feels beyond your control

When we're deeply afraid, we naturally experience an accelerated heartrate because our body's sympathetic nervous system activates its natural defensive mechanisms. Once put into motion, we experience increased pulse and breathing rates, elevated blood pressure and tensed muscles. Intentionally breathing slowly and deeply activates the parasympathetic nervous system, calming the body by decreasing blood pressure, heart and breathing rates and relaxing tense muscles. Deep breathing exercises associated with meditation and the slow breath prayers practiced in many faith traditions help calm our body when fear surges.

3. Stay present

We fear what we suspect might happen in the future. When we stay grounded in the present, it's harder for our thoughts to slip away into uncharted territory. Practicing centering prayer or mindfulness helps us grow in our ability to stay present and teaches us how to reel our thoughts back in if they begin to stray too far into what-if scenarios. When fear overwhelms you, take some time to focus on the present by repeating the word or phrase you use in mindfulness or centering prayer. Repeated slowly, in the rhythm of a deep in-breath followed by a deep out-breath, our heart rates slow, our minds settle and we stay grounded in the present.

4. Practice letting go of perfection

No one gets everything "right." Making any decision involves trade-offs. You have an awesome responsibility in caring for your child's chronic illness, but you can't determine and control all outcomes affecting her. Some of us naturally have a higher desire for control than others do. If that's you, remind yourself frequently that you're doing the best you can, but ultimately, you're not in control of all things. Releasing control is not a weakness; it could become your greatest strength. Give yourself permission to release control and then visualize yourself letting go. And when fear rises up in the middle of the night, take a few deep breaths and allow your centering word to carry you back to the present, away from the fear.

Read more from Bonnie — Letting Go of the Way Things Were, The Day My Son's Endo Kicked Me Out and What Saved My Son's Life.

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Scott Benner talks with Carly, who has lived with type 1 diabetes since 2003, about managing the fear that comes with T1D — for herself and for those around her — and what it looks like to stop letting fear drive the car.